Prader-Willi Syndrome is an Obesity-Related Genetic Disorder
Prader-Willi Syndrome is an Obesity-Related Genetic Disorder
SAN DIEGO, Sept. 27, 2018 /PRNewswire/ -- Prader-Willi California Foundation will host its Annual State Conference to educate families raising a child or adult diagnosed with Prader-Willi syndrome, a rare and extraordinarily complex genetic disorder. Professionals welcome. The conference will be held on Saturday, October 27, at the Doubletree by Hilton, Sacramento.
For More Information or to register for the conference visit www.PWCF.org
| WHAT: | Prader-Willi California Foundation Annual State Conference |
| WHEN: | Saturday, October 27, 2018 - 9:00 am to 5:00 pm |
| WHERE: | Doubletree by Hilton Sacramento 2001 Point West Way, Sacramento, CA 95815 |
| COST: | PWCF Members $85 / $150 couple; Non-Members $100 |
This year’s conference focuses on the importance of connecting families and professionals with their local PWS community. Experts will present on such topics as longitudinal research on behavioral interventions, exercise and play activities for persons with PWS of every age, nutrition, special needs financial planning, positive psychology and self-care, and an overview of current PWS research. The simultaneous Youth and Adult Program provides persons with PWS and their siblings a fun-filled day of Halloween themed activities including games, Zumba, arts and crafts, and a dance party.
Prader-Willi syndrome is the leading genetic cause of obesity and its hallmark symptoms include low muscle tone, an insatiable drive to eat no matter how much has been eaten, and behavioral symptoms similar to and often more severe than those experienced by persons with Autism. No known medication controls or even reduces the insatiable appetite. Undiagnosed and unmanaged, PWS causes morbid obesity and premature death. But there are management strategies that save lives and improve the quality of life of all who are impacted by this complex medical disorder. A diagnosis of PWS does not have to mean morbid obesity. The outlook for persons born with PWS is better than ever before.
Prader-Willi California Foundation
Contact: Emily Dame, Executive Director
310-372-5053
info@pwcf.org
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SOURCE Prader-Willi California Foundation
