PTC Therapeutics Opens Applications for the Annual STRIVE Awards Program and Introduces a New Award Category
SOUTH PLAINFIELD, N.J., Jan. 14, 2021 /PRNewswire/ -- PTC Therapeutics, Inc.. (NASDAQ: PTCT) today announced the launch of the seventh annual STRIVE Awards program for Duchenne muscular dystrophy. The Awards provide a grant to patient advocacy organizations around the world who are committed to developing innovative and sustaining programs that help address the unmet needs of the rare disease community. This year, a new entry category dedicated to supporting programs that focus on the transition of those living with Duchenne from adolescence to adulthood has been introduced.
"The new award category recognizes the recent progressions seen in the treatment and management of Duchenne, with many individuals now living longer, fulfilled lives as adults – a milestone that seemed unachievable just a few years ago," said Mary Frances Harmon, Senior Vice President, Corporate Relations, PTC Therapeutics. "However, this improvement in care creates new challenges, and guidance and support from local organizations will be critical to helping these individuals smoothly navigate the transition to adulthood."
Until recently, children with Duchenne did not usually live beyond their teens.1 However, improvements in cardiac and respiratory care mean that life expectancy is increasing, with many Duchenne patients now reaching their 30s and 40s.1,2 As a result of this, there is an increasing emphasis on quality of life and psychosocial support for the Duchenne community, meaning there is an urgent need to coordinate and improve the transition from childhood to adulthood.3
Since inception, the STRIVE program has supported over 30 patient initiatives from not-for-profit organizations around the world. Winning programs have improved access to diagnosis and treatment; created career opportunities for adults with Duchenne; raised awareness of Duchenne in educational, public and healthcare settings; and provided emotional and physical support to caregivers. Further details of all previous winning programs, as well as interviews with last year's winners discussing the impact of the STRIVE Award on their organization and local community, can be found here.
The deadline for submissions is March 15, and eligible organizations can submit their proposals through an application form available here. Winners will be announced in September 2021.
About the STRIVE Awards Program
For further information about the program and previous recipients, as well as guidance and support with writing grant entries, please visit the STRIVE section of the PTC website.
About Duchenne Muscular Dystrophy
More information regarding Duchenne is available through the Muscular Dystrophy Association and the Parent Project Muscular Dystrophy. Additionally, information and resources are available at www.duchenneandyou.com
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Company Codes: NASDAQ-NMS:PTCT