With a laser focus on new horizons in neuromuscular research and care, the Muscular Dystrophy Association (MDA) is combining its Clinical and Scientific Conferences for the first time, establishing a robust, state-of-the-art gathering for both clinicians and investigators from across the nation.
| NEW YORK, March 26, 2019 /PRNewswire/ -- With a laser focus on new horizons in neuromuscular research and care, the Muscular Dystrophy Association (MDA) is combining its Clinical and Scientific Conferences for the first time, establishing a robust, state-of-the-art gathering for both clinicians and investigators from across the nation. Medical and scientific experts in neuromuscular disease from academia, private practice, government and industry will be part of this inaugural gathering, themed “Progress in Motion”. The Annual MDA Clinical and Scientific Conference will be held April 14-17, 2019, at the Hyatt Regency Orlando.
“MDA’s care and research network has been vital to each milestone and achievement in neuromuscular disease. Convening the research and clinical communities under the umbrella of one comprehensive conference is part of MDA’s ongoing commitment to facilitate collaboration as well as further strengthen our ability to make a powerful impact in diagnosis, progression and treatment,” said MDA President and CEO Lynn O’Connor Vos. “We know that it requires both researchers and clinicians working together to make the necessary strides in both providing care and finding a cure – ultimately advancing our organization’s mission.” Expected to draw over one thousand attendees, conference highlights include Dr. Janet Woodcock’s keynote speech, a multi-expert U.S. Food and Drug Administration (FDA) panel and more than 25 platform and 80 poster presentations. “This is an unprecedented time of progress for neuromuscular disease treatments,” said Janet Woodcock, M.D., Director, Center for Drug Evaluation and Research. “In just the last three years, new therapies have been approved by the FDA – providing previously non-existent therapeutic options to patients who need them most. I look forward to discussing and celebrating these successes, as we welcome a new era in neuromuscular disease treatment and research.” The conference provides an invaluable opportunity for key members of the neuromuscular disease community to discuss life-changing advancements, explore new investigative opportunities and work directly with individuals facing neuromuscular diseases. Conference Highlights & MDA Flagship Initiatives
The conference will cover a broad range of topics, including genetic-based diagnostics and the rise of personalized medicine; latest developments in newborn screening; best practices in disease management concerning cardiac care, physical therapy, bone health, technology and nutrition; transitioning from pediatric to adult care; augmentative communication; therapeutics and clinical trials. The full conference agenda is available on the MDA website at: https://www.mda.org/conferences/2019-clinical-and-scientific-conference/agenda About MDA MDA supports the largest network of multidisciplinary clinics providing best-in-class care at more than 150 of the nation’s top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational conferences, events and materials for families and health care providers. Each year, thousands of children and young adults learn vital life skills and gain independence at MDA Summer Camp and through recreational programs, at no cost to families. For more information, visit mda.org.
SOURCE Muscular Dystrophy Association |
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