When Her Daughter Was Diagnosed With A Rare Disease, This Accountant Started A Biotech

Karen Aiach, 43, is the founder and CEO of Lysogene, a biotech company developing gene therapy treatments for rare central nervous system diseases.

Remarkably, the French native had no background in science or the pharmaceutical industry, let alone the advanced fields of gene therapy, before starting the business. Aiach was an audit specialist for Arthur Andersen who went on to found her own boutique consultancy in 2001. Then, in 2005 her baby daughter, Ornella, was diagnosed with Sanfilippo Syndrome A, a rare neurodegenerative disease that has no cure and can reduce life expectancy to less than 20 years.

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