Susan Fiorella, a mother of three and a colleague at Kaiser Permanente, recently shared with me the story of her son’s battle against a neglected disease. These are her words:
Nineteen months ago, I thought I was the mother of three healthy children. Suddenly our lives changed forever. One day, my beautiful, playful 2 ½-year-old son Jacob seemed to be suffering from a stomach bug. As the hours passed, he grew increasingly lethargic. We took him to his doctor’s office where we were told that Jacob’s vital signs were abnormal. Moments later an ambulance was called. We raced to our local Children’s hospital, where we were met by a team of exceptional physicians and nurses.
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