Today, Rettsyndrome.org announces their campaign “OVERPOWER RETT” for Rett Syndrome Awareness Month in October.
September 27, 2018 Cincinnati, OH -- Today, Rettsyndrome.org announces their campaign “OVERPOWER RETT” for Rett Syndrome Awareness Month in October. This national initiative is designed to raise awareness and funds for continued Rett syndrome research.
OVERPOWER RETT brings greater awareness to Rett syndrome, a neurological disorder caused by genetic mutation, causing delayed development and loss of motor planning. Individuals lose the ability to walk, talk, and experience seizures, breathing abnormalities, and more over time.
Every two hours a baby is born who will be diagnosed with Rett syndrome, often between 6 and 18 months of age. This disorder is extremely rare, affecting 1 out of every 10,000 girls and even fewer boys, which is why parents so often fill the vital role of advocate for their child.
“Rett syndrome steals a lot from our kids,” says Tim Frank, Rettsyndrome.org Director of Marketing and Communication, and parent to Ella (8) with Rett syndrome. “It takes their voice and most of their physical strength. Too often Rett syndrome gets the upper hand. That’s why OVERPOWER RETT is important in the battle to beat Rett. Everyone is a part of the solution.”
Rettsyndrome.org plans to leverage OVERPOWER RETT by supporting events across the country to raise crucial funds for research, including cutting edge research in gene therapy. “Our families, volunteers and advocates are passionate about serving our community,” says Melissa Kennedy, Executive Director Rettsyndrome.org. “We are honored to partner with them to raise awareness and funds so we can move closer to a world without Rett syndrome.”
Rettsyndrome.org challenges the community to take a stand in the OVERPOWER RETT campaign. Write #OverpowerRett on your bicep, forearm or hand, strike a pose and post it to social media using #overpowerrett and tag those with Rett syndrome who have inspired you. There are a wide variety of events and opportunities throughout October to spread the word about Rett syndrome, all while raising life-changing funds for research. Visit their website to learn more; www.rettsyndrome.org.
About Rettsyndrome.org
As a major private funder of Rett syndrome research, Rettsyndrome.org has funded over $44M in high-quality, peer-reviewed research grants and programs to date. The organization hosts the largest global gathering of Rett researchers and clinicians to establish research direction for the future. Rettsyndrome.org, a 501(c) 3 organization, has earned Charity Navigator’s prestigious 3 star rating year after year. To learn more about our work and Rett syndrome, visit www.rettsyndrome.org or call (513) 874-3020.
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