Openly Rare with Paul Kidwell Podcast Launches with Conversation about Rare Disease Film Festival

CAMBRIDGE, Mass.--(BUSINESS WIRE)-- Openly Rare with Paul Kidwell, a monthly podcast series dedicated to the discussion around rare diseases made its debut today. The podcast, created and hosted by Paul Kidwell, a 20-year PR veteran within the life science industry, will feature provocative and timely conversations with researchers, newsmakers, patient advocates, business leaders and rare disease experts. These illuminating discussions will focus on all facets of this complex topic that, despite its name, impacts millions of individuals worldwide.

“The discussion around rare diseases is multi-layered and its impact reverberates throughout all geographies, social strata and personal demographics,” said Paul Kidwell. “During my 20 years working within the life science sector, I have had the privilege of helping rare disease patients, researchers, caregivers and businesses share intimate stories about their involvement in this therapeutic setting. It’s this very personal experience that I bring to Openly Rare and will help stimulate my discussions.”

Openly Rare launched today with a conversation between Kidwell and the co-creators of “DISORDER: The Rare Disease Film Festival,” Daniel DeFabio and Bo Bigelow. In 2017, the Festival had a successful introduction in Cambridge, MA, with a two-day event that featured select films, presentations, and discussions around rare diseases. The second installment of the Festival will take place in 2019 in San Francisco.

The balance of the 2018 schedule is:
October 3, 2018: Philip R. Reilly, M.D., author, “Orphan: The Quest to Save Children with Rare Genetic Disorders”

November 7: Joyce Kulhawik, Emmy Award-winning arts and entertainment critic and three-time cancer survivor

November 27: Paul G. Richardson, M.D., Clinical Program Leader and Director of Clinical Research of the Jerome Lipper Multiple Myeloma Center, Dana Farber Cancer Institute

The 2019 schedule is being finalized and will be announced in October, 2018.

Today’s podcast and all future episodes can be found here:

Apple Podcasts
https://itunes.apple.com/us/podcast/openly-rare/id1428933691

Google Podcasts
https://www.google.com/podcasts?feed=aHR0cHM6Ly9vcGVubHlyYXJlLmJsdWJycnkubmV0L2ZlZWQvcG9kY2FzdC8=

Stitcher
https://www.stitcher.com/podcast/paul-kidwell/openly-rare

Tunein
https://tunein.com/podcasts/Health--Wellness-Podcasts/Openly-Rare-p1147665/

Spotify
https://open.spotify.com/show/7ICuuaxlARyIKXWVeEDoLl

Android
https://subscribeonandroid.com/openlyrare.blubrry.net/feed/podcast/

RSS feed
https://openlyrare.blubrry.net/feed/podcast/

About Openly Rare with Paul Kidwell
Openly Rare with Paul Kidwell is a monthly podcast covering all aspects of rare diseases and will feature conversations with newsmakers and leaders from the world of biomedical and academic research, patient engagement, caregiving, rare disease patients and their families, as well as others who in some way have been touched by the growing number of rare illnesses. The podcasts will cover a range of topics, including research and treatment, the business and science of rare disease drug development, patient storytelling, policy debates and the cultural impact of rare diseases.

To learn more about Paul Kidwell and to hear the Openly Rare podcast, go to paulkidwell.com. You can also listen to the Openly Rare podcast on Apple Podcasts, Google Podcasts, Stitcher, Tunein, Spotify and with all Android players.

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