Pharma Sets Price On Life With World’s Most Expensive Drug

‘Mommy!” A high-pitched scream echoed through the cold June morning in 2013. Genevieve Jorge, asleep next to her husband, slowly opened her eyes, confused.

“Help me! Mom!”

The scream, louder this time, shocked Jorge wide awake and she sat upright in the double bed. After a slight pause, while she waited for her eyes to adjust to the darkness, she struggled out from under the duvet and stumbled towards the sound of her 26-year-old daughter’s voice.

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