When Ann Marie Jennison’s son Charlie had his 14th birthday party, he had one request: in lieu of gifts he wanted donations to help fight NGLY1 Deficiency, the rare genetic disorder afflicting both him and his sister, Jane. Over $1,200 in donations ended up being made to the Grace Science Foundation (GSF), whose mission is to cure NGLY1 Deficiency.
September 5, 2018
· 2 min read