In honor of International Rare Disease Day, a young rare disease advocate with a leukodystrophy, Ellie McGinn, presented her doctors at Kennedy Krieger Institute’s Moser Center for Leukodystrophies with $450,000, bringing the total she and her family raised for research of the rare brain disease, Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL), to $1.6 million in four years.
February 28, 2020
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