National Organization for Rare Disorders

63 articles with National Organization for Rare Disorders

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  Horizon Pharma and NORD Celebrate Anniversary of the Orphan Drug Act

  6/5/2018

  Horizon Pharma and the National Organization for Rare Disorders (NORD) launched a new campaign today that recognizes innovation in rare disease therapeutics since the passing of the Orphan Drug Act in 1983.

• NORD Launches RareInsights - New Initiative to Support Data-Driven Advocacy, and Presents "5 Myths About Orphan Drugs and the Orphan Drug Act"

  5/30/2018

  The National Organization for Rare Disorders (NORD) today launched RareInsights™.

• New Report Shows States Fall Short on Policies to Help Reduce Burden of Rare Diseases Affecting 1 in 10 Americans

  3/20/2018

  A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders Rare Action Network™ (NORD RAN).

• NORD to Collaborate with FDA on Pilot Patient Engagement Activity

  2/28/2018

  Listening Sessions to Enable Sharing Rare Disease Experiences with FDA Review Divisions

• Incyte Supports the Myeloproliferative Neoplasm Community in Honor of Rare Disease Day 2018

  2/28/2018

  “Beyond Blue,” a short documentary by an award-winning filmmaker, debuts to raise awareness of MPNs MPN Heroes® 2018 nominations now open for submission

• National Organization for Rare Disorders Launches Free CME Program To Educate Medical Professionals About Rare Diseases

  5/9/2017

• Research Grants Available For Rare Diseases From National Organization for Rare Disorders

  4/26/2017

• National Organization for Rare Disorders Release: Report Shows Majority Of States Fall Short On Policies To Help Reduce Burden Of Rare Diseases Affecting 30 Million Americans

  12/13/2016

• Cydan Development Celebrates Rare Disease Day With Gift To Support The National Organization for Rare Disorders Natural History Project

  2/29/2016

• Medunik Canada Is Pleased To Announce The Launch Of National Organization for Rare Disorders Founder, Abbey Meyers' Memoir "Orphan Drugs: A Global Crusade"

  2/16/2016

• FDA Awards National Organization for Rare Disorders $250,000 Grant To Support The Development Of 20 Natural History Studies For Rare Disease Research

  12/10/2015

• National Organization for Rare Disorders Publishes Guide To Promote Physician Awareness Of Rare Lung Disorder

  10/28/2015

• National Organization for Rare Disorders Releases First-Ever State Progress Report For Rare Diseases

  10/23/2015

• New Video From National Organization for Rare Disorders Promotes Awareness Of Rare Movement Disorder Neurogenic Orthostatic Hypotension

  8/25/2015

• Keynote Speakers Announced For National Organization for Rare Disorders's Rare Diseases & Orphan Products Breakthrough Summit

  8/20/2015

• National Organization for Rare Disorders And University of Maryland Partner On PCORI Award To Advance Rare Disease Research

  7/17/2015

• Research Grants For Rare Disease Research Available From National Organization for Rare Disorders; Deadline To Submit Abstracts Or Letters Of Intent Is July 31

  7/15/2015

• Soligenix Announces Collaboration With The National Organization for Rare Disorders And The Cutaneous Lymphoma Foundation In Advancing Its Phase 3 Study Of SGX301 For The Treatment Of Cutaneous T-Cell Lymphoma

  6/23/2015

• New White Paper From BIO, National Organization for Rare Disorders, And Ernst & Young LLP Finds Orphan Drug Tax Credit Is Crucial To Rare Disease R&D

  6/17/2015

• Neurotrope Joins National Organization for Rare Disorders (NORD) Corporate Council

  4/24/2015