Muscular Dystrophy Association

95 articles with Muscular Dystrophy Association

• Muscular Dystrophy Association Announces Recipient of 2023 MDA Legacy Award for Achievement in Clinical Research is Merit Cudkowicz, MD, MSC, Renowned Neurologist and Clinical Researcher in ALS

  3/6/2023

  The Muscular Dystrophy Association announced Merit Cudkowicz, MD, MSC, a renowned neurologist and clinical researcher in ALS from Massachusetts General Hospital, will receive the 2023 MDA Legacy Award for Achievement in Clinical Research.

• Muscular Dystrophy Association Celebrates FDA Approval of Skyclarys, First Ever Treatment for Friedreich’s Ataxia from Reata Pharmaceuticals

  3/1/2023

  The Muscular Dystrophy Association (MDA) celebrates the US Food and Drug Administration (FDA) approval of Omaveloxolone (Skyclarys), the first ever treatment for Friedreich’s Ataxia (FA), a rare neuromuscular disease on Rare Disease Day today, February 28.

• Muscular Dystrophy Association Awards Venture Philanthropy Funding to PathMaker Neurosystems to Develop Neuromodulation Treatment for ALS

  1/17/2023

  The Muscular Dystrophy Association (MDA) and PathMaker Neurosystems Inc. announced today an investment of $600,000 through the MDA Venture Philanthropy (MVP) program to PathMaker to advance its work in amyotrophic lateral sclerosis (ALS).

• Muscular Dystrophy Association Celebrates the Approval of Relyvrio from Amylyx for the Treatment of ALS

  9/30/2022

  The Muscular Dystrophy Association celebrates the US Food and Drug Administration approval of sodium phenylbutyrate/taurursodiol for the treatment of amyotrophic lateral sclerosis, on September 29.

• Muscular Dystrophy Association Gathers Global Leaders at Annual Conference, the Largest Convening in the Field of Neuromuscular Disease Research & Care in the World

  2/9/2022

  Bringing together more than 1,200 attendees both in-person and virtually, MDA leads the way as the only voluntary health organization in the neuromuscular disease space to combine the latest in research, clinical care, treatment and management, with the goal of transforming care through innovation and allowing people living with neuromuscular disease to live longer lives.   [09-February-2022]  

• Muscular Dystrophy Association Awards 18 Grants Totaling Over $1.6 Million for Development Grants and Idea Awards

  10/28/2021

  The Muscular Dystrophy Association announced the awarding of 18 new MDA grants totaling over $1.6 million toward neuromuscular disease research.

• Play with a Pro! Nyheim Hines, NFL Indianapolis Colts Running Back Joins MDA Let's Play Gaming Community on June 12 from 7-8pm for Game Night

  6/1/2021

  Viewers and players can expect an exciting evening of programming, including gameplay from popular titles Among Us and Jackbox games, with kids and families living with muscular dystrophy, ALS, and related neuromuscular diseases, coming together to build community.

• Muscular Dystrophy Association Announces Community Education & Fundraising Events To Find a Cure for ALS

  4/26/2021

  The Muscular Dystrophy Association announced programming and fundraising events in support of people living with Amyotrophic Lateral Sclerosis throughout ALS Awareness Month in May, and participation in Major League Baseball's designation of Lou Gehrig's Day on June 2, in the effort to cure the disease.

• Registration opens for Virtual MDA Summer Camp for Children with Neuromuscular Diseases

  4/21/2021

  The Muscular Dystrophy Association announced the opening of registration for its virtual MDA Summer Camp for children ages 8 to 17 living with muscular dystrophy and related neuromuscular diseases.

• Golf Events Bring Lifesaving Funds for Research & Care for 300,000+ Families Living with Disabilities Including Muscular Dystrophy, ALS and Over 40 Related Neuromuscular Diseases

  3/22/2021

  Registration is open for golf events at premier championship courses including the Arizona Biltmore Golf Club, Eugene Country Club, The Golf Club at Newcastle, and Western Lakes Golf Club, in support of MDA

• Muscular Dystrophy Association to Roll Out the 39th Annual MDA Shamrocks Campaign with Retailers Nationwide

  2/16/2021

  Thousands of retailers nationwide support MDA's fundraising campaign to transform the lives of people living with muscular dystrophy, ALS and related neuromuscular diseases throughout February and March.

• MDA Names Kristine Welker as Chief of Staff

  1/13/2021

  The Muscular Dystrophy Association announced it has appointed Kristine Welker to the newly created role of chief of staff.

• John Howell Appointed to the Muscular Dystrophy Association's Board of Directors

  12/22/2020

  John Howell , Co-Founder and President of the ComSovereign Holding Corporation (Symbol: COMS), the U.S.-based provider of 4G LTE Advanced and 5G-NR (New Radio Systems) communications and technology systems, has been named to the Board of Directors for the Muscular Dystrophy Association (MDA).

• Nyheim Hines of the Indianapolis Colts to Wear Cleats for Muscular Dystrophy Association on Gameday Sunday, December 6

  12/3/2020

  For the fifth-consecutive season, the National Football League players will raise awareness for non-profit organizations and causes on the field through the My Cause My Cleats campaign, which allows players to utilize their platform by customizing their gameday cleats to raise funds through auctions of the cleats.

• The Muscular Dystrophy Association Elects Renowned Medical Researcher and Scientist Donald S. Wood, PhD as President and CEO

  11/12/2020

  Dr. Wood will launch next chapter of scientific discoveries and innovative medical services to continue to transform the lives of people with muscular dystrophy, ALS and related neuromuscular diseases

• Muscular Dystrophy Association Launches MOVR Visualization and Reporting Platform to Improve Patient Care and Accelerate Drug Discovery

  10/28/2020

  Partnership with DNAnexus will enable 37 MDA Care Centers to analyze data from the MOVR Data Hub to better understand disease progression and compare outcomes across therapeutic categories

• 33 Organizations Representing Millions of Patients Urge Policymakers to Adopt "Patient-First" Policy Agenda

  10/13/2020

  A coalition of 33 organizations representing millions of people with pre-existing conditions launched an unprecedented effort by releasing their top priorities for the next Administration.

• Muscular Dystrophy Association Awards Five Grants Totaling Over $1.6 Million for Amyotrophic Lateral Sclerosis (ALS) Research

  9/30/2020

  MDA continues to step up fight against ALS during this challenging time, building on its $168 million research commitment

• Muscular Dystrophy Association Announces Relaunch of Iconic Telethon Hosted by Actor & Comedian Kevin Hart

  9/9/2020

  The Muscular Dystrophy Association announced the relaunch of their legendary Jerry Lewis MDA Telethon with Kevin Hart joining as host.

• MDA Advocacy Institute - Facebook Live - Q&A: Accessible Voting in the 2020 Election for People with Disabilities -- Featuring U.S. Senator Bob Casey, Hosted by MDA's Kristin Stephenson, Friday, September 11 at 2:30pm ET

  9/1/2020

  What: The Muscular Dystrophy Association's Advocacy Institute invites you to join a special virtual conversation on Facebook Live featuring U.S.