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Director, Patient Advocacy and Rare Disease Engagement

Moderna, Inc.
Cambridge, MA
Start date
Apr 12, 2024

Job Details

The Role

Moderna is seeking a Director of Patient Advocacy and Rare Disease Engagement, based in Cambridge, MA, to lead the development and execution of a comprehensive Patient Advocacy Strategy across our rare disease portfolio. This role will develop relationships with Patient Advocacy organizations and KOLs to advance patient care initiatives. As an advocate for the patient voice, this individual will collaborate with cross-functional teams, including R&D, Commercial, Government Affairs, and Communications, to integrate patient insights into our enterprise-wide programs and business objectives. Additionally, the Director will play a pivotal role in shaping healthcare policy by engaging patient groups in discussions with regulatory authorities, government bodies, and health technology assessment groups, ensuring the patient perspective remains central to decision-making processes. The role will also conduct scientific exchange with prioritized HCPs.

Heres What Youll Do

  • Develop and implement a global Patient Advocacy strategy from clinical stage to market for Moderna and lead its successful execution. Lead the strategy across our global markets, ensuring alignment with local teams and leveraging regional insights and relationships.

  • Drive, build, and enhance strategic alliances with national and global Patient Advocacy Groups that have a strong interest in rare disease policy through touch bases and other authentic engagements. This includes mapping key patients and rare disease groups in key markets and building relationships that enables progressing critical business objectives and improve patient care. It is important that this role take a global view of patient advocacy and rapidly expand its impact outside the US.

  • Engage with scientific societies, patient advocacy groups, and councils to build agreement around treatment guidelines and advocate for updates where necessary.

  • Represent Moderna at key Patient Advocacy Conferences and symposia, at national and international scientific congresses in order to progress partnerships that support better patient care.

  • Develop and execute Patient Advisory Boards, Patient Leadership Councils and other forums in support of critical objectives pertaining to better understanding the patient true unmet need, gathering insights, supporting the amplification of the patient voice and ultimately, enabling Moderna to become embedded in the rare disease communities and ecosystem to better support patients and external stakeholders.

  • Work with the government relations, regulatory and access teams to facilitate engagement of patients groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions.

  • Collaborate with government relations to develop policy strategies and advocacy papers that support enhanced patient care and lead their execution.

  • Ensure patient materials are impactful and resonate with the community by incorporating feedback from patient advisory groups.

  • Represent the voice ofindependent patient communities within Moderna, ensuring these perspectives shape the rare disease pipeline and related decisions.

  • Stay abreast of the latest trends and thought leader insights in patient advocacy, integrating new ideas into Moderna's patient engagement programs.

  • Partner with though leaders to amplify impact on patient care and achieve business objectives.

  • Manage the Patient Advocacy budget and manage relationships with external partners or agencies.

  • Conduct scientific exchange with HCPs in the US to support education and gather insights regarding rare diseases.

  • Collaborate with HR and communications teams to create patient-centric materials and initiatives that raise disease awareness and connect employees to the patient journey.

Heres What Youll Need (Minimum Qualifications)

  • Bachelors degree in relevant field

  • 10+ years experience of relevant patient advocacy or related experience in the biotech/pharma industry the pharmaceutical industry or non-profit advocacy organization

  • Proven experience in external engagement with HCPs

  • Demonstrated knowledge of the biotech/pharma industry, including deep understanding of the Legal, Regulatory, and Compliance environment, including a strong understanding of guidelines and best practices for patient advocacy engagement

Heres What Youll Bring to the Table (Preferred Qualifications)

  • Advanced degree in relevant field a plus (MD, PharmD, PhD)

  • Ability to champion the voice of patients and families

  • Ability to work in a fast-paced environment, prioritize tasks, and successfully manage multiple projects

  • Demonstrated ability to effectively work independently

  • A collaborative spirit, the ability to see anothers point of view, empathy, and the ability to identify a path forward in ambiguous situations

  • Strong oral and written communication skills; ability to lead and influence without authority

  • Ability to successfully develop and maintain strong working relationships between both cross-functional internal colleagues and external stakeholders

  • A desire to make an impact as part of a high-growth, transformational company that is Bold, Relentless, Curious, and Collaborative

Moderna is pleased to provide you and your family with a comprehensive and innovative suite of benefits, including:

  • Highly competitive and inclusive medical, dental and vision coverage options
  • Flexible Spending Accounts for medical expenses and dependent care expenses
  • Lifestyle Spending Account funds to help you engage in personal enrichment and self-care activities
  • Family care benefits, including subsidized back-up care options and on-demand tutoring
  • Free premium access to fitness, nutrition, and mindfulness classes
  • Exclusive preferred pricing on Peloton fitness equipment
  • Adoption and family-planning benefits
  • Dedicated care coordination support for our LGBTQ+ community
  • Generous paid time off, including:
    Vacation, sick time and holidays
    Volunteer time to participate within your community
    Discretionary year-end shutdown
    Paid sabbatical after 5 years; every 3 years thereafter
  • Generous Paid Leave offerings, including 18 weeks of 100% paid parental leave for all new parents
  • 401k match and Financial Planning tools
  • Moderna-paid Life, LTD and STD insurance coverages, as well as voluntary benefit options
  • Complimentary concierge service including home services research, travel booking, and entertainment requests
  • Free parking or subsidized commuter passes
  • Location-specific perks and extras!

About Moderna

Since our founding in 2010, we have aspired to build the leading mRNA technology platform, theinfrastructure to reimagine how medicines are created and delivered, and a world-class team. We believe in giving our people a platform to change medicine and an opportunity to change the world.

By living our mission, values, and mindsets every day, our peopleare the driving force behind our scientific progress and our culture.Together, we are creating a culture of belonging and building an organization that cares deeply for our patients, our employees, the environment, and our communities.

We are proud to have been recognized as a Science Magazine Top Biopharma Employer, a Fast Company Best Workplace for Innovators, and a Great Place to Work in the U.S.

As we build our company, we have always believed an in-person culture is critical to our success. Moderna champions the significant benefits of in-office collaboration by embracing a 70/30 work model. This 70% in-office structure helps to foster a culture rich in innovation, teamwork, and direct mentorship. Join us in shaping a world where every interaction is an opportunity to learn, contribute and make a meaningful impact.

If you want to make a difference and join a team that is changing the future of medicine, we invite you to visit to learn more about our current opportunities.

Moderna is a smoke-free, alcohol-free and drug-free work environment.

Moderna is a place where everyone can grow. If you meet the Basic Qualifications for the role and you would be excited to contribute to our mission every day, please apply!

Moderna is proud to be an equal opportunity workplace and is an affirmative action employer.

Moderna is committed to equal employment opportunity and non-discrimination for all employees and qualified applicants without regard to a person's race, color, sex, gender identity or expression, age, religion, national origin, ancestry or citizenship, ethnicity, disability, military or protected veteran status, genetic information, sexual orientation, marital or familial status, or any other personal characteristic protected under applicable law. Moderna is an E-Verify Employer in the United States. We also consider qualified applicants regardless of criminal histories, consistent with legal requirements.

Belonging, Inclusion, and Diversity are critical to the success of our company and our impact on society. Were focused on attracting, retaining, developing, and advancing our employees and believe that by cultivating diverse experiences, backgrounds, and ideas, we can provide an environment where every employee is able to contribute their best.

Moderna is committed to offering reasonable accommodations to qualified job applicants with disabilities. Any applicant requiring an accommodation in connection with the hiring process and/or to perform the essential functions of the position for which the applicant has applied should contact the Accommodations team at (EEO/AAP Employer)



Moderna is advancing messenger RNA (mRNA) science to create a new class of transformative medicines for patients. Moderna’s platform builds on continuous advances in basic and applied mRNA science, delivery technology and manufacturing, providing the Company the capability to pursue in parallel a robust pipeline of new development candidates. Moderna is developing therapeutics and vaccines for infectious diseases, immuno-oncology, rare diseases and cardiovascular diseases, independently and with strategic collaborators.

mRNA is now a turning point in the history of science, medicine, technology, even humankind itself. With this breakthrough discovery, many of the world’s biggest and most challenging medical problems are no longer a question of “how?” but merely a question of “when?”

Come with us as we pursue the uncharted reaches of possibility and make your mark on the future of medicine.


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Company info
200 Technology Square
Cambridge, MA

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