Associate Director, Global Patient Advocacy and Engagement

BioMarin is the world leader in delivering therapeutics that provide meaningful advances to patients who live with serious and life-threatening rare genetic diseases. We target diseases that lack effective therapies and affect relatively small numbers of patients, many of whom are children. These conditions are often inherited, difficult to diagnose, progressively debilitating and have few, if any, treatment options. BioMarin will continue to focus on advancing therapies that are the first or best of their kind. 

BioMarin’s Product Portfolio Development (PPD) group is responsible for BioMarin’s corporate and R&D governance, business operating model (core teams and sub-teams) and portfolio strategy. PPD integrates overall product strategy and ensures planning and timely execution to inform decision making and development of therapies and life cycle strategies at BioMarin.

Global Patient Advocacy and Engagement (GPAE) is a strategic function within BioMarin PPD that works with patients, caregivers, and disease-specific non-profit patient advocacy groups throughout the life cycle to advance important therapies for unmet medical needs. The GPAE group at BioMarin integrates BioMarin internal patient advocacy efforts, develops global, prospective patient advocacy plans for each disease area, partners with external advocacy groups to advance mutual goals in the patient ecosystem such as education, access and awareness, and supports project and study patient recruitment and retention activities.

The incumbent is a global subject matter expert on industry-wide patient-centric approaches and common practices. This role focuses on ensuring systematic inclusion of patient perspective both at a corporate and therapeutic-area level. The GPAE Global Lead leverages his/her leadership and expertise to advise, influence and lead colleagues throughout BioMarin toward advancing patient advocacy and engagement in a seamless, integrated and strategic fashion.

Core Competencies Include: 

• Leadership
• Communication
• Problem Solving and Decision Making
• Influencing and Persuasion
• Planning, Prioritization and Organization
• Teamwork and Relationship Building
• Proactivity and Initiative
• People Management

Core Responsibilities Include:

• Drive strategic planning
• Budget management
• Patient advocacy group relationship building
• Alignment, coordination and motivation of cross-functional colleagues
• Drive PAG communications for assigned program area(s)
• Influence internal patient centric culture
• Understand and abide by global compliance regulations 
• Travel globally to various patient advocacy related conferences 

We are an equal opportunity employer and all qualified applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity, sexual orientation, national origin, disability status, protected veteran status, or any other characteristic protected by law.