Save the Date for Global Genes’ Third Annual RARE in the Square

WHEN: January 7 - 9, 2019 from 8 a.m. - 5 p.m. daily.

WHERE: San Francisco’s Union Square, across from the Westin St. Francis Hotel

335 Powell St, San Francisco, CA 94102

WHY: Offering opportunities to collaborate, RARE in the Square participants forge partnerships that propel rare disease innovation. Global Genes, together with patient groups and industry partners, build relationships that promote the emerging role of patients as partners and drivers in rare disease drug development. Collectively, rare disease affects 30 million Americans and 350 million people worldwide. That’s 1 out of 10 people affected by rare disease. 

Thank you, Gilead, Insmed, Horizon Pharma, Alnylam Pharmaceuticals, Vertex, Mallinckrodt, Centogene, and Progenics for your support in making this event possible. For sponsorship inquiries please contact Kathy O’Connor at or Seth Fritts at To get involved or to learn more please visit

In addition, Global Genes is hosting a panel during the 2019 Biotech Showcase co-produced by Demy Colton and EBD Group. The session takes place at the Hilton San Francisco Union Square on Tuesday, January 8, 2019 at 4:30 pm and focuses on a new era of patient-led collaborations in rare disease drug discovery.



About Global Genes®

Global Genes is a 501(c)(3) nonprofit organization on a mission to connect, empower and inspire the rare disease community. We provide hope for more than 350 million people affected by rare disease around the globe. To date, we’ve educated 6 million people in 100 countries about rare disease, equipped 30,000 patients and advocates with tools and resources, and provided $400,000 in support for innovative patient impact programs. This is just the beginning of what we can achieve together. Visit to get involved today. 

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