National Organization for Rare Disorders, BioNJ and Patient Advocacy Groups to Collaborate on Rare Disease Day Event at New Jersey State House

TRENTON, N.J.--(BUSINESS WIRE)--The National Organization for Rare Disorders, BioNJ and 11 New Jersey-based patient advocacy groups are joining forces for a unique educational event about rare diseases to be held at the New Jersey State House on March 4, 2013. The gathering, which will convene local leaders from government, non-profit, and the biotechnology sector, will be conducted on behalf of state residents living with rare diseases that plague nearly 1 in every 10 Americans. The event is highlighted by a New Jersey success story – the latest in-state biopharmaceutical company to offer a significant treatment advance for one group of patients with a rare intestinal disorder. Patients, researchers, health care advocates, members of the New Jersey government and biotech industry, as well as concerned citizens are invited to attend the event on Monday, March 4, 2013, from 11:30 a.m. to 12:30 p.m. at Committee Room 11, 4th floor, Annex Building, New Jersey Statehouse.

Back to news