BioMarin and Believe Limited Announce the Debut of 'Hemophilia: The Musical'
SAN RAFAEL, Calif., /PRNewswire/ -- BioMarin Pharmaceutical Inc. (NASDAQ: BMRN) today announced the debut of the Broadway-style 'Hemophilia: The Musical,' a first-of-its-kind theatrical production featuring 25 students affected by a bleeding disorder. A recording of the six-song performance is now available at BreakingThroughHemophilia.com.
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"'Hemophilia: The Musical' was a defining moment for many of the young adults who participated," said Patrick James Lynch, Believe Limited CEO and Breaking Through! Musical Theater Intensive director. "Together, these 25 teens stood on stage and sang about real and relatable experiences for young people who live with bleeding disorders. Through music, they were able to share what their lives are like with a broader audience and connect with each other and others in their community in a unique way."
Today's musical performance followed the story of high school students who are working through the challenges of being perceived as "different" due to their medical conditions. As the musical unfolds, the young adults are shaped by events in their lives and learn how to embrace who they are and follow their dreams, while living with a bleeding disorder. The moral of the story is summed up with a quote by one of the performers, who says, "Although having an illness limits you, there are one million things you can do for every one thing you cannot."
As a program collaborator, The Foundation for Art & Healing will assess the impact of 'Hemophilia: The Musical' and the Breaking Through! Musical Theater Intensive on participants. The assessment will measure the impact of the experience on each student and determine whether participating in the program helped the students feel more confident and connected with one another and better prepared to manage their condition. The results will be used to further validate the value of programs like 'Hemophilia: The Musical' and the Breaking Through! Musical Theater Intensive, and will be made available publically to underscore the importance of creative expression and the arts for people living with chronic disease.
"There is an important connection between creative expression and wellness for people living with chronic conditions, like hemophilia, which can be particularly isolating," said Jeremy Nobel, M.D., Harvard Medical School faculty member, and founder and president of The Foundation of Art & Healing's UnLonely Project. "BioMarin's sponsorship of this program and our research will enable us to contribute to the already extensive body of data that supports the value of creative expression and the arts in improving health and wellbeing."
In preparation for the performance, the students participated in the three-day Breaking Through! Musical Theater Intensive workshop that included coaching sessions on the impact of breathing and relaxation on pain management, as well as the psychosocial benefits and therapeutic value of self-expression in the arts. The musical theater intensive and performance were produced in partnership with the Los Angeles-based Believe Limited to help empower the bleeding disorder community through the power of music, performance and the arts and both were exclusively sponsored by BioMarin.
"'Hemophilia: The Musical' is an excellent example of what can be accomplished when meaningful creative outlets are provided for young people with bleeding disorders who often have to seek alternative avenues for self-expression and group participation," said Hank Fuchs, M.D., President of Worldwide Research and Development at BioMarin. "Being part of this pioneering effort is consistent with who we are as a company and our focus on improving the quality of life for people living with rare disease."
For more information about 'Hemophilia: The Musical' and the Breaking Through! Musical Theater Intensive program, visit BreakingThroughHemophilia.com.
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