|Event Name||Rare Diseases Expo 2016
Wednesday, October 19, 2016
Saturday, October 22, 2016
Spier Conference Centre
|Description||The purpose of this conference is to provide a global forum for all stakeholders within the Rare Disease field, both locally and abroad, to participate in open discussion, enhance models of best practice and share specialist knowledge around rare diseases and orphan drugs. Incorporating the annual International Conference on Rare Diseases and Orphan Drugs (ICORD) for 2016, RareX has an extended program, to incorporate patients, their families and caregivers as well as support groups and minority groups within the rare disease community.
Not only will this be the first time the ICORD conference will be hosted on the African continent, but it will also be the first conference since the announcement of the collaboration between ICORD, the European Organisation for Rare Diseases (EURORDIS) and Rare Diseases International (RDI) during the 2015 conference in Mexico. This collaboration seeks to boost progress on rare disease policy development globally, and will form a major element of the RareX and ICORD conference agenda.
EURORDIS, RDI and ICORD bring the commitment of key leaders in the field of rare diseases and orphan medicines and we encourage all rare disease stakeholders to participate in the conference – to present their findings, share relevant experiences, participate in interactive debates and discuss innovations, trends and concerns within the field of rare diseases. We also invite fieldworkers, practitioners and patients themselves from around the world to share their experiences and the challenges faced as well as solutions adopted in order to overcome them.
RareX will also include the official launch of the African Alliance which seeks to unite countries across Africa in their efforts to improve awareness, accessibility to treatment and supportive care as well as development of comprehensive, shared policies amongst member nations.