Butterfly Boy Refuses To Give Up, Raises £65K For Rare Skin Condition Epidermolysis

Most teenage boys love to run around and play – but ‘Butterfly Boy’ Jonathan’s skin is so delicate it falls away at the slightest knock.

Fourteen-year-old Jonathan Pitre, from Russell, Canada, lives in constant pain as 90% of his skin blisters and peels from his body - making it look as if he has third degree burns.

The excruciating pain is so bad he has constant headaches and nausea, and often spends nights awake in agony.

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